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Krista Long

Moms of Special Needs Kids

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Moms of Special Needs Kids

A place for moms who deal with those special challenges in raising their kids and use social media as a way to connect.

Members: 290
Latest Activity: 1 day ago

Welcome to the place for Moms raising children with special needs. I am fairly hands off in running the group, but have been known to delete comments that are clearly promotional in nature. Enjoy the community.

I dedicate this song to all of you:

Discussion Forum

L.Mae Wilkinson

Repetitive questioning 5 Replies

Hi, My son age 7 has a diagnosis of PDD-NOS. We are trying to work on his repetitive questioning, and could use any tips/articles/links/blogs on the subject. Thank you.

Tagged: questioning, repetitive

Started by L.Mae Wilkinson. Last reply by L.Mae Wilkinson Apr 15.

Debbie Yost

Share Your Child's Abilities 8 Replies

About a year ago I started a monthly blog post on my blog called Ability Tuesday. The first Tuesday of each month I share one of my daughter's abilities, not her disabilities. Today is the first Tu...

Tagged: sharing, Abilities

Started by Debbie Yost. Last reply by Debbie Yost Jun 25.

Krista Long

Let's introduce ourselves! 47 Replies

This is the place to talk a little bit more about our children. My boys are now 14 and 10, and Konal, the 14 year old, has multiple disabilities. We have in home support from Arizona's behavioral h...

Tagged: introduction

Started by Krista Long. Last reply by catherine May 27.

MiaHysteria

Twitter ID's 18 Replies

Hi everyone~ I think sometimes it's nice to be able to know that I'm (we're) not the only one going through battles through the day, keeping our heads on straight and love in our actions. There ar...

Started by MiaHysteria. Last reply by Dawn Jun 29.

Carrie

What is your child's (children's) special need(s)? 14 Replies

I really am interested in meeting other moms who face similar challenges as we may have to (my daughter is still undiagnosed -- waiting on a skin biopsy). I thought it might be helpful for all of u...

Started by Carrie. Last reply by Dawn Jul 1.

MiaHysteria

Do You Have a Special Needs Blog? 44 Replies

Hello Everyone~ I just started a discussion for twitter id's, but also thought (half way through the post for that one) that knowing each other's blogs might be nice too. I have a blog that highli...

Started by MiaHysteria. Last reply by Wendy Sumner Winter 1 day ago.

Comment Wall (138 comments)

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138 Comments

Amy Domestico Comment by Amy Domestico on July 6, 2009 at 10:06am
Kathy Ireland! Talking about being a mom! Live now and taking calls! http://budurl.com/KathyIreland76
Robin Hartman Comment by Robin Hartman on July 6, 2009 at 9:24am
Just in case anyone needs one. Here is a how to for a weighted blanket: http://www.handmadenews.org/article/index.php?id=2015
Lisa Comment by Lisa on July 1, 2009 at 12:43pm
30% off all Lots To Learn Children's DVDs for all Twitter Moms! Use code TWITTER upon checkout for huge savings. 2009 DVD of the Year! expires 8/1/09
Lots To Learn DVDs
Lisa Walker Comment by Lisa Walker on June 28, 2009 at 7:59pm
Check out Pocket Full of Therapy's new catalog- it has a ton of great toys. Request a copy at www.pfot.com
Deborah Comment by Deborah on June 19, 2009 at 6:11pm
I'm planning a Back To School Event for August/September on my blog Comfort Joy Designs. I am looking for products to promote and guest bloggers. If you are interested in participating, please email me.
Tammy Lessick Comment by Tammy Lessick on May 27, 2009 at 9:16am
hi everyone. I'm doing a giveaway on my blog for OT In The Home, DVD hosted by Rachel Hunter.
shelley k Comment by shelley k on May 15, 2009 at 7:28am
hi everyone, hope you had a wonderful week! i just wanted to share with everyone my new blog, stop by and "holla!"
http://theplaygroundprincess.blogspot.com/
hugs!
Amy Domestico Comment by Amy Domestico on May 13, 2009 at 4:43pm
My 7 year old has spina bifida and being we are the only ones in our area with a kid who has this its great to be able to connect with other moms who can give advice and support, happy to be here!
Michelle Todd Comment by Michelle Todd on May 13, 2009 at 10:49am
Many of you have probably already seen this essay, but every time I read it, I realize how true it is. :) So, in case you missed it, I thought I would share it! Enjoy!

Welcome to Holland
by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability- to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip- to Italy. You buy a bunch of guidebooks and make wonderful plans. The Coliseum, The Michelangelo David. The Gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"HOLLAND?!" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there 's been a change in flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower paced that Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around...and you begin to notice that Holland has windmills...and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say, "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss.

But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.
Natasha Orona Comment by Natasha Orona on May 1, 2009 at 10:56am
Hello, Looking forward to meeting all you moms and seeing if anyone has had a child born with any type of Congintal Heart Defects? I lost my son due to HLHS and would love to meet anyone with similar experiences...

 

Members (290)

Samantha Aimee Crayonsetc MiaHysteria carole harris Carrie JudiElise Krista Long rondata Tammy Lessick Nostalchick Amazing_Grace Kara T. Tamanini Jean Myles Karen Putz Krista L. Peck Ellen Karen U Margaret Chaidez Kim Wirick Carrie Lindsey Kid Organizer Debbie Yost Candace McLane Sygnet Creations stirling Becky Lynn Ann Marie Curling Michelle Todd
 
 

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