Let's introduce ourselves!
This is the place to talk a little bit more about our children. My boys are now 14 and 10, and Konal, the 14 year old, has multiple disabilities. We have in home support from Arizona's behavioral health system and daily challenges juggling diet considerations, behavior management, his other issues, and my own health issues. I find my self using social media, such as twitter, as an escape system when things get overwhelming. Today would be a good example of an overwhelming day. I had the strange idea that we could actually get their room clean today.
Ha!
Ha!
Tags: introduction
Replies to This Discussion
-
Permalink Reply by rondata on -
Greetings. Single mom w/2 sons
One 11 yo super genius
One 7 year old with Williams Syndrome.
I have to say, I have the best of both worlds and don't regret any of it :)
-
Permalink Reply by Paula on -
Hi
Im Paula mother of one, from Madrid, Spain
Celia is hearing impaired and just got a cochlear implant. So far is working really great, even though it´s been only 3 weeks since the activation.
Looking forward to read u all
Paula
-
Permalink Reply by Ms Mir on -
Hi my name is Miriam. I have a 6 year old daughter with ADHD and dyslexia and a 4 year old son with high functioning autism and possibly ADHD. He is doing well with ABA therapy and play therapy but its expensive and shouldn't be because a lot of kids have these issues. I admit I am scared about their futures (I shouldn't be since I am an astrologer but.. when someone is closely connected to you, you can't see it clearly) so I would like to connect with other moms who understand.
-
Permalink Reply by Laura on -
great idea!
i am laura, mom of 5 kids (ages 22 down to 6) and brand-new grandmom of 1 baby girl....the best, most amazing baby grand girl ever!
my youngest, daniel was born 4 months early weighing 1lb 6 oz. remarkably, he avoided many of the devastating potential outcomes. but he has his challenges. he was tube fed for 4 years, has had 9 surgeries, 6 of them in the 1st year of his life. he struggles with multiple issues related to his sensory processing dysfunction. he is developmentally delayed but spends half of his 1st grade day mainstreamed. he still has residual chronic lung disease which makes him more vulnerable than the average 6 year old to colds, flu and poor air quality.
still he is an amazing little man (he is head and shoulders shorter than his peers) and has many, many fans, me being his biggest.
when i am not juggling life with my amazing family, i work as a neonatal intensive care nurse.
nice to meet you all.
-
Permalink Reply by Diana McDonough on -
I am Diana. I have 2 kids - a NT (but very smart) girl who will be 14 in about 2 weeks, and a 10yo who has ADD/ADHD combined type, NLD and superior coginitive intellect. Life is never dull in our house.
My son was 6-weeks premature after going through Chemotherapy with me. He has some fine motor deficits, and receives some intervention for that, mostly that he has access to a computer at all times (504-plan). He also has some hyper-sensory issues.
Initially, I fought the diagnosis of ADD/ADHD, because I (still) believe it is an over-used diagnosis. After months of feeling like a failure ("What the heck did I do wrong with this kid?") I finally gave in and accepted it. Fortunately for him, we realized relatively early (age 4) that there was a problem. By the time he was 5.5, he had been tested and officially diagnosed.
Looking forward to sharing with all of you!
-
Permalink Reply by Brea on -
My sons are Anthony - 6, Nathaniel - 3, and Szandor - almost 11 months. Anthony is diagnosed Autistic, Nathaniel has Autistic tendencies and speech and motor delays, Szandor has balance and mobility delays. Anthony lives with his father, Nathaniel and Szandor live with my boyfriend (their father) and I. Nathaniel and Szandor are currently within the process of receiving early intervention services, in which Nathaniel goes to their preschool during the day, and Szandor receives weekly therapy.
-
Permalink Reply by Becky on -
Hi all! I am Becky and I'm mom of three kids... Two boys 12 and 10 and a daughter who is 2. Ricky, my oldest, was a 33 week premie because of a ruptured bowel that turned out to be because of cystic fibrosis. He has also been diagnosed with bipolar-NOS, PDD-NOS, and SPD, and has a number of learning issues. He is in a special day class in middle school (seventh grade) with speech and OT services, and is mainstreamed for his elective and PE. He actually does pretty well in PE despite his learning issues. Right now he is pretty stable with his bipolar disorder, but has been sicker the past year or so with the CF stuff. In March he got a medi-port, which has been very helpful for when he needs IVs. He'll be 13 in November.
My other two kids are neurotypical... My 10 year old is actually in gifted programs at school and through the county.
I am in the middle of my second divorce (from my daughter's dad) but it's amicable at this point. The boys' dad, my first husband, is not part of their lives.
I blog about Ricky here and have a general blog (friends only -- but if you're on LiveJournal let me know and I'll likely add you to my friends list) here.
Also, I always like making friends in cyberspace with other parents of special needs kids, so feel free to add me. :)
It's nice to meet you all!
-
Permalink Reply by Tricia on -
I have three children, ages 12, 11 and 9. My boys are the oldest, my youngest child is a girl. (that makes sense doesn't it if the boys are oldest? durh). Anywho, my 11 year old has been diagnosed all over the place, but we've finally settled, so to speak, on early onset bipolar disorder, oppositional defiant disorder, and adhd inattentive type. Its' been a rocky past 5 years trying to get him stable, and we are finally there, although we've just moved to Arizona right after getting these diagnosis. I'm having a horrible time trying to get the school to help, because he is so intelligent and doesn't have any major problems at school, all the acting out and mood swings, rages, etc., happen here at home. Looking forward to getting to know all of you..
-
Permalink Reply by Dark_Priestess on -
Hi! I'm Di, and my kids are Mikey, my little super-genius, who is 10 and was diagnosed with ADHD and anxiety at 3, and then with bipolar at 5, and then, he went through another full battery psych eval at 9 and we were told he has an 'executive form' of ADHD which affects his decision making and his reason and logic if I remember correctly, and then his med doctor diagnosed him with Asperger's. We're also pretty sure we're dealing with Sensory Processing Disorder here, too, but no confirmation there. He's also asthmatic, and has restless-legs syndrome. No other serious complications from having been a mild preemie (5 weeks early) or the cord wrapped around his neck and been blue when he came out.
Then there's Chrissy, who we're not positive if she has ADD or not. We know she's suffering depression, but that's partly from being in between the boys who need so much attention and therefore she just doesn't get enough. We're working on that! So far, she's pretty neurotypical. No MAJOR health problems. She even managed to escape the asthma and allergies in the family!
And finally, there's Bubba, Derek. We're POSITIVE he's got the ADHD, as he responds well to Ritalin. Yes, I know, it's illegal to give it to anyone other than the person it's prescribed to, but I can't take it, because it turns me into an idiot who can't remember my husband's name, and I was tired of the boys trying to kill each other. So I slipped him a Ritalin, and lo and behold! Good behavior ensued! Again, we suspect but have not confirmed the Sensory Processing Disorder here, too. Bub also has the asthma and allergies that run in the family.
Add to their stuff my adhd and ptsd, and the fact that my parents live with us and my mom is a verbally abusive (bleep) and favors my oldest very blatantly and obviously and it makes for an interesting life around here. :D
-
Permalink Reply by Samantha on -
Greetings to all!
I am a stay-at home mom to 2 kiddos, my daughter who is 2 and my son who is 5 and has Angelman Syndrome. I am doing my all to get my candle business going started this last Feb but as we as know the economy isn't the best right now. My son Cedric was finally diagnosed this year with Angelman's prior to May his Dx was CP with global delays. It has been a roller coaster understanding this new diagnosis and finding other kiddos and families in the same situation. Angelman Syndrome is a rare genetic nervous system disorder that is frequently misdiagnosed as either CP or Autism. It took the drs longer to figure out my son because the one part to this disorder is seizures and my son (thank you God) does not have them. This is the main reason I started my blog to help people become aware of this disorder.
I look forward to reading about everyones kiddos and making some great friends here, take care all.
-
Permalink Reply by Kirsten on -
Hello, My name is Kirsten, I go by CheekyMonkey8 on twitter. I'm mom to a beautiful six year old daughter with Epilepsy. She's had some learning delays but over all is high functioning. We're in the process of finding out whether Meggers has ADD, nervous about this. Meggers has a definite attention problem but unsure if it's an age thing or ADD? We're also in the process of changing meds and as many of you probably know this can be a stressful time.
I have two blogs, the first Is My Life For The World To See and is all about our family. The second is The Political Pendulum and is a tongue and cheek blog about politics that my brother, sister, and I write. I'm so glad I found this website and this group. :o)
-
Permalink Reply by Nancy on -
My name is Nancy. My son is Tyler. He is a 25 week preemie who is now 3. He has a few preemie related long term issues. He suffered from grade three and 4 IVH resulting in Hydrocephalus. He has a shunt that was revised just a month ago. He has ROP stage 3 rush disease which leaves him with Vision issues. he has mild CP and walks with a walker. He also is cute as could be. He goes to preschool where he is cognitively on target. He has speech delays that we are working on. I live in Arizona and am trying to maneuver my way in the DDD system and avoid using CRS!
My blog is about my family and life with a micro preemie and my other is my photos. I love taking photos..
Check me out on twitter!!
Announce yourself!
© 2010 Created by Megan Calhoun
