Moms of Special Needs Kids

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Comment by Madd Mari on October 6, 2008 at 8:33pm

My son was diagnosed with ADHD even though two school psychs, two of his teachers, his ophthalmologist, and the ER dr who had to stitch his chin recently think he's autistic. I'm thinking of getting an other dr to reevaluate him. I'd like to see him have more help with his social and motor skills, which the school can't really give him without a diagnosis.

Comment by Dee on October 6, 2008 at 11:53am

Looking for other mom's with children with Spina Bifida (which I have spelled wrong for ten years) Connor is now ten and he left for nature's classroom today and I'm kind of freaking out. lol. Glad I found this group, though.

Comment by Marie on October 6, 2008 at 11:38am

Hi everyone, I do not have a child with special needs however I grew up with a brother of ADHD. I also have a friend who recently lost her infant son to HLHS. It was not detected through out her pregnancy. Before this had happened, I myself never even knew that this existed. We need to spread the word, and educate as many people as possible. Take Care.

Comment by Books A Latte on October 4, 2008 at 9:19pm

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Comment by Kim on October 4, 2008 at 12:32pm

Hi there all, I have a none year-old with Autism and a seven year-old son with spinal cord cancer who now uses a wheelchair for mobility. I actually just put a video up on my profile of his recent Make-a-Wish trip to Disney World!
Glad to meet everyone.

Comment by Samantha on October 2, 2008 at 10:59pm

Hello, new as well I have a 5 year old son with Angelman Syndrome, rare genetic nervous system disorder...just thought I would say hi, I also have a blog http://www.celticangelwarriors.blogspot.com
Look forward to meeting everyone, take care

Comment by Gina Happel on September 29, 2008 at 11:03pm

Hi, new to this. I have 4 kids (all teens) the youngest (twin boys) are ADHD with mild to moderate mental retardation. Any suggestions would be very helpful about meds, and different therapies that are out there.

thanks

Comment by Nostalchick on September 29, 2008 at 8:50am

Hello, new here.. I have a 9 year old with "high-functioning Autism" a 7-1/2 year old advanced kid tracking for GATE and a 4 year old terror- all boys.
I am an originating member of a special needs parents support group here in So. Cal. called THRIVE in Claremont. We meet the 3rd Tues. of every month 6-8 PM and there is quality child care provided. Please let me know if interested! Have learned a lot from my fellow special needs moms :) Glad to be here!

Comment by Tammy Lessick on September 29, 2008 at 7:54am

School completed their evaluations. Now they have to check out the other schools and their programs. The school my 9 yr old son goes to is for special needs children only. His age puts him in 5th grade, but his testing shows him at the 6th and 7th grade level academically. They do not have any children at his current school that are academically as high as he is or as gifted. But, he has extreme delays in daily living and fine motor skills. He is just now learning how to write. He is nonverbal and communicates by using someone else's hand to guide their finger across the keyboard to each key. He is just now starting to access a touch screen with his own finger. It took his teacher 2weeks of working with him to get him to start communicating with her. I am so excited and proud. I don't want him sent to another school right now that he has bonded with his current teacher. Next year maybe. But he needs a little stability. If they move him to a different school every time he academically outgrows the one he is at, they will be moving him several times in one school year. I homeschooled him last year. He taught himself a lot, but in three months time, we covered a whole academic year worth of material.

Comment by Crayonsetc on September 28, 2008 at 1:37pm

Hi all, I'm Leslie and I just joined. I am mom to K, who has Asperger's, ADD & a whole lot of physical stuff which they are just calling hypermobility, but I would more likely believe it is Ehlers Danlos. (yes, we have been to genetics, but there is no test for the hypermobilty ED, so it is a complete guess)
She was diagnosed with hypertonia at 18 months (sounds familiar, like the post below), but after graduating from PT, she was a normal kid... until this last year when we realized there was more going on. Since February we have been through PT, OT, ST eval, all come back saying weekly therapy. We have seen Ortho, podiatrist, genetics and she now has braces for her knees, orthotics for her feet, and they are talking about vision therapy for her visual Motor functions.
We are going through the process of an IEP at school, but since she has been on a 504 (too smart for an IEP, so we got stuff in place through the back door) we don't have to do as much as the school. Ok, I will go check things out and see if I was supposed to put this somewhere else ;)

Leslie

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