Moms of Special Needs Kids

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Comment by Christy B on March 3, 2009 at 12:00pm

Hello everyone! I am new to twittermoms and I actually seen the article in Redbook Mag. and it seemed to be an answer for me. I am a 31 year old single mother from Western Ky and a full time student. I have a daughter who is 12 years old from my first marriage (widowed) and an 8 year old son from my second marriage (divorce). My son is ADHD and Bipolar and has bad anxiety and others that are usually associated with adult bipolar. My daughter has been diagnosed recently with Mood disorder (although I am not sure about that one). I hope to get to know you all here, it gets a little lonely when you are alone. Thanks!

Comment by Jane Baxter on February 27, 2009 at 3:58pm

Hi Angela,

My son is now 8 but he had oral apraxia when he was young. He went to a speech therapy school near here from the age of 3 till he was 5. I had him in speech therapy from the age of 2 because i could tell there was something wrong. After a year he had an analysis done by the government speech therapist (a year on the waiting list). She discovered the apraxia and oral motor disfunction. We started searching for a new private therapist and found a wonderful who changed Grants life.
It is a struggle - especially the communication. We, as a family, learned sign language, beginning when he was about 2 1/2 so that he could communicate with us. It was one of the best things we could have done because it enabled a lot of the frustration to go away for him.

He is better now and speaks fine. The struggle was long but had a happy ending. He has some other issues - we can chat about later.

Take care,

Jane

Comment by Marya on February 27, 2009 at 5:14am

I'm figuring out twitter....

I have three children w/special needs. One son has neurofibromatosis type 1 w/learning disability, my youngest son has Down Syndrome and repaired AV Canal. My daughter has mild developmental delay w/learning disability.

Comment by stacey on February 22, 2009 at 11:52pm

hi im stacey and my daughter was born with a bad heart and is still having to see card because it could always get really bad agian she has had 2 heart sugerys and she is doing great now she is 14 months will be 15 months thur well hope to get to know yall better talk to you later have a great day and god bless

Comment by Krista Long on February 20, 2009 at 4:20pm

I am actually a people first language person too, but I had a character limit. :)

Comment by Katrina on February 19, 2009 at 2:59pm

Hi I'm mom to 3 kids ... our middle son is 5 1/2 years old and has Down syndrome and was recently diagnosed with Celiac Disease. We are adjusting to cooking gluten free which is a bit of a challenge! I am a huge advocate for "People First Language" and I have to admit the title of this group made me cringe ... using People First Language the group name would be "Moms of Kids with Special Needs" :)

Comment by Heather Binning on February 19, 2009 at 12:09pm

Have any of you heard of this theory?

http://www.come-over.to/FAS/MtnDew.htm

Using Mt Dew as a stimulant for ADHD.

Comment by Heather Binning on February 18, 2009 at 5:20pm

Hello everyone!

I have to admit, I'm new to technology, scared, but willing and wanting to learn. I love to read, watch movies (2 hour escape), match my undies to my outfit, bit OCD about organizing closets...okay the whole house, travel, playing volleyball, and getting massages. How often do I get to do those things? More now that I've changed my focus...but that is causing issues with others who were so used to me doing everything for them (hubby, other family, friends)

I have 2 special needs children : son with Asperger's and daughter with Osteogenesis Imperfecta type III (severe brittle bones). Never a dull moment in my house :) Since I've changed my life, their lives have turned for the better as well. Funny how that works.

I work full time for a bowling pro shop distributor and am writing a book for SPED moms called "Martyrdom Sucks: A Survival Guide for Moms of Special Needs Kids". It's about being a woman first, mom second....which is double hard to do when your kids have double the needs. I have an agent and am shopping for a publisher. If any of you would like to contribute your thoughts and advice to other moms, I'll gladly add it in!! By no means do I think I've got a corner market on knowledge. I fully believe in lifting the whole community to prosper.

I look forward to exchanging loves, laughs, and irks with everyone!
Heather

Comment by Lisa Jo Rudy on February 14, 2009 at 7:44am

I asked families to send Valentines to loved ones with autism. They did! Here are nearly fifty wonderful appreciations to enjoy, share, or add to: http://autism.about.com/b/2009/02/14/valentines-galore-for-loved-ones-with-autism.htm.

Lisa Jo Rudy
www.autism.about.com

Comment by stirling on February 4, 2009 at 4:32am

hi
i HAVE a mom... hehe
i also HAVE cerebral palsy
its great to see so many moms who have such love for their kids.
you have already given me insights
hopefully i can give you some back

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