Moms of Special Needs Kids

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Comment by Lisa Walker on June 28, 2009 at 7:59pm

Check out Pocket Full of Therapy's new catalog- it has a ton of great toys. Request a copy at www.pfot.com

Comment by Deborah on June 19, 2009 at 6:11pm

I'm planning a Back To School Event for August/September on my blog Comfort Joy Designs. I am looking for products to promote and guest bloggers. If you are interested in participating, please email me.

Comment by shelley k on May 15, 2009 at 7:28am

hi everyone, hope you had a wonderful week! i just wanted to share with everyone my new blog, stop by and "holla!"
http://theplaygroundprincess.blogspot.com/
hugs!

Comment by Amy Domestico on May 13, 2009 at 4:43pm

My 7 year old has spina bifida and being we are the only ones in our area with a kid who has this its great to be able to connect with other moms who can give advice and support, happy to be here!

Comment by Michelle Todd on May 13, 2009 at 10:49am

Many of you have probably already seen this essay, but every time I read it, I realize how true it is. :) So, in case you missed it, I thought I would share it! Enjoy!

Welcome to Holland
by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability- to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip- to Italy. You buy a bunch of guidebooks and make wonderful plans. The Coliseum, The Michelangelo David. The Gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"HOLLAND?!" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there 's been a change in flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower paced that Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around...and you begin to notice that Holland has windmills...and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say, "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss.

But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.

Comment by Natasha Orona on May 1, 2009 at 10:56am

Hello, Looking forward to meeting all you moms and seeing if anyone has had a child born with any type of Congintal Heart Defects? I lost my son due to HLHS and would love to meet anyone with similar experiences...

Comment by Aimee on April 27, 2009 at 7:40am

Moms with ASD kids: Did you see Google's new project: Unbelievable!!
http://sketchup.google.com/spectrum.html

Comment by Becky Fimbres on April 23, 2009 at 12:16pm

Hi moms....Just wanted to share...our local NBC affiliate here in Tucson, did a story on my son's epilepsy....please check it out! We really wanted to put a positive spin on it. Please feel free to share it with anyone and everyone!
Joaquin's Story

Comment by Mara Kaplan on April 22, 2009 at 9:59am

Landscape Structures, a playground manufacturer wants you opinions and thoughts and sensory playgrounds. Join the conference call at Noon EST tomorrow, April 23. Send me a message to register.

Comment by JudiElise on April 22, 2009 at 9:20am

Just wanted to say I was on a BlogTalkRadio show with Jenn Brockman today talking about our family of special needs. It is in archive already and you can listen to it whenever you want. Sorry about some of the sound issues. Technical issues with system.

Special Needs Kids

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